Skin disorder

Special Guest Jessica Kenley, talks about EB and her books

11 years ago

Special Guest Jessica Kenley, talks about EB and her books

epidermolysis bullosa

juntional herlitz

skin disorder

memoirs

books

+5

+5

+4

+4

+4

+3

+3

+3

+1

31:09

epidermolysis bullosa

juntional herlitz

skin disorder

memoirs

books

+5

+5

+4

+4

+4

+3

+3

+3

+1

Special Guest Heather Fullmer, talks about being an EB mom & the EBRP

11 years ago

Special Guest Heather Fullmer, talks about being an EB mom & the EBRP

epidermolysis bullosa

ebrp

skin disorder

special need parenting.

+4

+4

+3

+2

+2

+2

+1

+1

23:32

epidermolysis bullosa

ebrp

skin disorder

special need parenting.

+4

+4

+3

+2

+2

+2

+1

+1

Special Guest Derra Nicole Sabo, talks about having EB and her books

11 years ago

Special Guest Derra Nicole Sabo, talks about having EB and her books

epidermolysis bullosa

skin disorder

derra nicole sabo

+3

+3

+2

+2

+2

+1

+1

27:35

epidermolysis bullosa

skin disorder

derra nicole sabo

+3

+3

+2

+2

+2

+1

+1

What is Butterfly Talk?

11 years ago

What is Butterfly Talk?

epidermolysis bullosa

skin disorder

special need parenting.

butterfly children

butterfly child book

+5

+5

+4

+4

+4

+3

+3

+3

+2

15:17

epidermolysis bullosa

skin disorder

special need parenting.

butterfly children

butterfly child book

+5

+5

+4

+4

+4

+3

+3

+3

+2