Butterfly Talk

Epidermolysis Bullosa Awareness & Support

All shows

Dealing with Anemia with Epidermolysis Bullosa

9 years ago

Dealing with Anemia with Epidermolysis Bullosa

anemia

epidermolysis bullosa

recessive dystrophic

+2

+2

+2

+2

+1

+1

17:42

anemia

epidermolysis bullosa

recessive dystrophic

+2

+2

+2

+2

+1

+1

Lots of Information about Epidermolysis Bullosa

10 years ago

Lots of Information about Epidermolysis Bullosa

28:55

Special Guest Dennis Vannasse Talks about his EB & Special Need Children Books

10 years ago

Special Guest Dennis Vannasse Talks about his EB & Special Need Children Books

epidermolysis bullosa

books

+2

+2

27:44

epidermolysis bullosa

books

+2

+2

Epidermolysis Bullosa Explained in Layman's Terms

10 years ago

Epidermolysis Bullosa Explained in Layman's Terms

epidermolysis bullosa

recessive

recessive dystrophic

dominant dystrophic

simplex

+5

+5

+4

+4

+3

+3

+3

+2

+2

24:39

epidermolysis bullosa

recessive

recessive dystrophic

dominant dystrophic

simplex

+5

+5

+4

+4

+3

+3

+3

+2

+2

Special Guest Francesca Tenconi Talks About Camp Wonder & the CSDF

10 years ago

Special Guest Francesca Tenconi Talks About Camp Wonder & the CSDF

epidermolysis bullosa

pemphigus

camp wonder

children's skin disease foundation

francesca tenconi

+5

+5

+4

+4

+3

+3

+3

+2

+2

28:09

epidermolysis bullosa

pemphigus

camp wonder

children's skin disease foundation

francesca tenconi

+5

+5

+4

+4

+3

+3

+3

+2

+2

Special Guest Kenny Breaux talks about his son's EB Awareness efforts

10 years ago

Special Guest Kenny Breaux talks about his son's EB Awareness efforts

epidermolysis bullosa

+1

27:18

epidermolysis bullosa

+1

Special Guest Jodi Champagne Talks about her EB Awareness & Veterans Projects

10 years ago

Special Guest Jodi Champagne Talks about her EB Awareness & Veterans Projects

epidermolysis bullosa

veterans

air force

army

navy

+5

+5

+4

+4

+3

+3

+2

+1

29:58

epidermolysis bullosa

veterans

air force

army

navy

+5

+5

+4

+4

+3

+3

+2

+1

Frequently Asked Questions about Epidermolysis Bullosa Answered

10 years ago

Frequently Asked Questions about Epidermolysis Bullosa Answered

epidermolysis bullosa

+1

30:51

epidermolysis bullosa

+1

Special Guest Christie Zink Talks about her EB Awareness & Research Efforts

10 years ago

Special Guest Christie Zink Talks about her EB Awareness & Research Efforts

epidermolysis bullosa

eb awareness week

irefuseeb

+3

+3

+2

+2

+2

+1

28:05

epidermolysis bullosa

eb awareness week

irefuseeb

+3

+3

+2

+2

+2

+1

Special Guest Jennifer (Lyric) Bolles talks about Life with EB

11 years ago

Special Guest Jennifer (Lyric) Bolles talks about Life with EB

epidermolysis bullosa

awareness

skin care

skin conditions

inspirational

+5

+5

+4

+4

+3

+3

+2

+2

+1

29:15

epidermolysis bullosa

awareness

skin care

skin conditions

inspirational

+5

+5

+4

+4

+3

+3

+2

+2

+1