There is no easy way to tell this story. Donate here https://www.justgiving.com/crowdfunding/babyotto

Beautiful baby Otto has recently been diagnosed with Krabbe Leukodystrophy, a devastating and incredibly rare condition that affects only around 1 in 100,000 babies. which means his time with his family is severely limited to no more than a 18 months, Time that should be spent living life and creating memories.

This cruel disease means Otto’s tiny body is unable to produce the enzymes needed to protect his brain and nervous system. As the disease progresses, it will slowly take away the abilities most of us take for granted — his ability to move, to see, to hear, and even to feed himself. The reality his family now face is one no parent should ever have to endure.