I am losing my eye sight to an eye disease called Choroideremia. It is degenerative and genetic. So others in my family have it as well. My brother and two nephews. My grandfather went blind in his 40s. I turned 40 in November 2015 and in an effort to see the world before I can't anymore and also to raise awareness and funds for many worthy charities and organizations (Alzheimers, Parkinsons, Autism, Tourettes, ALS, Blindness, Mental Health, Rett Syndrome, Crohns Disease, Cancer, Animals, Kids). With the goal to be $500,000 in total by the end of the year.
I am legally blind and as part of my Choroideremia symptoms I have a sensitivity to light especially sunlight. So I run these marathons blindfolded. However, for Antarctica it was so cloudy I didn't need to. My intentions of running the full marathon change early in the run due to my health and physical condition. I talk about all of that plus I speak with my running guide and other runners and the guy that put the whole thing toget