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RadioActive -EP.17- Where are the patients? Engaging patients in their own lives with Lenny Jason

RadioActive -EP.17- Where are the patients? Engaging patients in their own lives with Lenny Jason

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About the show

Sunday February 22, 2015 @6pm

On this episode of RadioActive, Dr. Lenny Jason joined to discuss his work on Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME). During our hour together Dr. Jason shared his definition of Community Psychology as a public health model of psychology along with his work on engaging patients in case definition and the naming of their health issues as they relate to CFS/ME. In breaking the myth of the ‘yuppy flu’ as CFS/ME had been known, he highlights the need to create research that challenges the status quo research that was not reflecting the needs and narratives of the patients with the disease.

When the show originally aired CFS/ME had been renamed Systemic Exertion Intolerance Disease (SEID). Dr. Jason discussed the importance of including patient voice in decisions that impact their diagnoses and understanding of the impacts of CFS/ME.

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