Marie Clay has been a powerful Huntington’s disease patient advocate for over 20 years. During that time, Marie has educated countless people about HD. She has done law enforcement education, Crisis Intervention Training, firefighter and first responder training, hospital training, and much more. She has spoken to many community organizations, like the Rotary Club, about HD.
Marie has been on Capitol Hill many times to speak up for the HD Parity Act, and recently, in September 2015, Marie spoke on a panel at the FDA (Food and Drug Administration) Patient Focus Meeting. Marie was able to tell members of the FDA about the challenges of living with Huntington’s disease.
In 2008, Marie started a support group in Virginia Beach and has held many fundraising events. Marie has worked very closely with Sitrin, a care facility in New York State that now has a unit dedicated specifically to HD/ALS. She has introduced many families to Sitrin, and everyone’s hope is that one day we will have mo