The care.data programme in the NHS came off the rails, despite – or possibly because – officials tried presenting it as an ‘open data’ initiative. It isn’t. But this conflation of ‘data sharing’ with open data is far from unique; from the National Pupil Database to your tax records and Cabinet Office’s resurrection of plans for mass sharing of citizen data that last surfaced in an obscure clause in the 2009 Coroners and Justice Bill, the government has designs on your data.
With Phil Booth - former national coordinator of NO2ID, who now coordinates medConfidential, which campaigns to ensure every flow of data into, across and out of the NHS and care system is consensual, safe and transparent.
Slides for this talk can be found here - http://www.scribd.com/doc/228429932/Friday-lunchtime-lecture-Why-selling-people-s-medical-tax-school-records-isn-t-open-data-by-Phil-Booth